ParkinsonNet
ParkinsonNet
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De regiobijeenkomst van Joanne Derksen (Almere)
Veel regio's organiseren dit voorjaar hun regiobijeenkomst. Voor wie nog wat inspiratie kan gebruiken in deze nieuwsbrief een inkijkje in de regiobijeenkomst van Joanne Derksen, fysiotherapeut in regio Almere. Hier verdelen ze de taken onder de diverse disciplines. Haar geheim voor een succesvolle regiobijeenkomst? "Kies een onderwerp dat voor alle disciplines interessant is. Zo neemt iedereen wat mee naar huis."
Переглядів: 98

Відео

De regiobijeenkomst van Robert Liesveld (Rotterdam)
Переглядів 2185 місяців тому
Door het hele land organiseren ParkinsonNet-zorgverleners regiobijeenkomsten. Wat maakt die bijeenkomsten tot een succes? We vroegen het de regiocoördinatoren. Wat blijkt? Er zijn veel verschillende succesfactoren. Van een afwisselend programma, tot een goede timing. Van een originele locatie tot een actieve werkvorm. De komende maanden delen we in iedere nieuwsbrief een filmpje met tips en ins...
Kansen en uitdagingen rondom inclusie in de parkinsonzorg - fysiotherapeut Katrijn Koenen
Переглядів 545 місяців тому
Fysiotherapeut Katrijn Koenen vertelt vanuit de praktijk waar zij tegenaan loopt bij de zorg voor mensen met een migratieachtergrond en/of laaggeletterdheid. Deze video werd gemaakt in het kader van het project diversiteit & inclusie. ParkinsonNet zet zich in voor de beste zorg voor iedereen met parkinson. In het diversiteitsproject onderzoeken we hoe we informatie toegankelijker kunnen maken e...
Kansen en uitdagingen rondom inclusie in de parkinsonzorg - taalambassadeur Dicky Gingnagel
Переглядів 555 місяців тому
Taalambassadeur Dicky Gingnagel geeft zorgverleners binnen de parkinsonzorg tips over de zorg voor mensen met een migratieachtergrond en/of laaggeletterdheid. Deze video werd gemaakt in het kader van het project diversiteit & inclusie. ParkinsonNet zet zich in voor de beste zorg voor iedereen met parkinson. In het diversiteitsproject onderzoeken we hoe we informatie toegankelijker kunnen maken ...
De Regiobijeenkomst van Marieke Janssen (Den Bosch)
Переглядів 1747 місяців тому
Door het hele land organiseren ParkinsonNet-zorgverleners regiobijeenkomsten. Wat maakt die bijeenkomsten tot een succes? We vroegen het de regiocoördinatoren. Marieke Janssen, coördinator van regio 's-Hertogenbosch, vertelt over haar succesvolle speeddate-bijeenkomst.
BikevoorParkinson 2023 - Aftermovie
Переглядів 1278 місяців тому
Nog nooit stonden we met zoveel tegelijk op de trappers tegen parkinson in het mooie Zuid-Limburg. We waren maar liefst met 514 fietsers sterk. En nog nooit stond er zo een hoog bedrag op de cheque: € 196.724,-! Inmiddels staat de teller zelfs op € 206.361,-! Een duizelingwekkend bedrag. Kijk voor meer informatie op www.bikevoorparkinson.nl.
World Parkinson Congress 2023 compilatie
Переглядів 20310 місяців тому
For everyone who couldn't join the World Parkinson Congress 2023 in Barcelona, this video gives you a small insight in this inspiring and interesting event.
BikevoorParkinson 2023 - fiets mee!
Переглядів 262Рік тому
Bent u er zaterdag 2 september bij in Valkenburg? Fiets mee! www.bikevoorparkinson.nl
In De Regio met... Christa Plasschaert
Переглядів 131Рік тому
Regiocoördinatoren zitten niet stil. Dat wisten we natuurlijk al. In deze rubriek geven we een inkijkje in de activiteiten die regiocoördinatoren samen met de zorgverleners uit hun regio organiseren.
In De Regio met... Sander van Lanen
Переглядів 75Рік тому
Regiocoördinatoren zitten niet stil. Dat wisten we natuurlijk al. In deze rubriek geven we een inkijkje in de activiteiten die regiocoördinatoren samen met de zorgverleners uit hun regio organiseren.
Meet ParkinsonNet International
Переглядів 277Рік тому
Meet the people behind ParkinsonNet International. For more information see www.parkinsonnet.com.
In De Regio met... Bernadette Kok van Breukelen
Переглядів 66Рік тому
Regiocoördinatoren zitten niet stil. Dat wisten we natuurlijk al. In deze rubriek geven we een inkijkje in de activiteiten die regiocoördinatoren samen met de zorgverleners uit hun regio organiseren.
In De Regio met... Nicolette Wiedeman (regiocoördinator Eemland)
Переглядів 139Рік тому
Regiocoördinatoren zitten niet stil. Dat wisten we natuurlijk al. In deze rubriek geven we een inkijkje in de activiteiten die regiocoördinatoren samen met de zorgverleners uit hun regio organiseren.
Parkinson's disease
Переглядів 103 тис.Рік тому
This accessible video explains Parkinson's desease in an easy, understandable language.
De ziekte van Parkinson - Animatie
Переглядів 20 тис.Рік тому
Wat is de ziekte van Parkinson? Deze prachtige animatie maakt parkinson in 2,5 minuut begrijpelijk, óók voor mensen met beperkte gezondheidsvaardigheden. Want goede parkinsonzorg is voor iedereen! De animatie is gemaakt door Homeyra Saiid, Emma Schalkers, Merlijn Sluiter en Ece Ozenir. Mede mogelijk gemaakt door ParkinsonNet, ParkinsonNL en de Parkinson Vereniging.
Bas Bloem en Bas Bloem over BikevoorParkinson 2022
Переглядів 186Рік тому
Bas Bloem en Bas Bloem over BikevoorParkinson 2022
BikevoorParkinson 2021 | Cheque-uitreiking
Переглядів 1592 роки тому
BikevoorParkinson 2021 | Cheque-uitreiking
BikevoorParkinson 2021 | Promo
Переглядів 3072 роки тому
BikevoorParkinson 2021 | Promo
Silver Linings - positieve kanten aan parkinson
Переглядів 2,6 тис.3 роки тому
Silver Linings - positieve kanten aan parkinson
Uitreiking Parkinson Lintje 2021
Переглядів 1643 роки тому
Uitreiking Parkinson Lintje 2021
Parkinson Lintje 2021 - Jolanda van Gorkum
Переглядів 1223 роки тому
Parkinson Lintje 2021 - Jolanda van Gorkum
Parkinson Lintje 2021 - Homeyra Saiid
Переглядів 2023 роки тому
Parkinson Lintje 2021 - Homeyra Saiid
Parkinson Lintje 2021 - Ankie Verstelle
Переглядів 803 роки тому
Parkinson Lintje 2021 - Ankie Verstelle
ParkinsonNet Congres 2021 | Terugblik
Переглядів 1553 роки тому
ParkinsonNet Congres 2021 | Terugblik
ParkinsonNet | een introductie
Переглядів 1,7 тис.3 роки тому
ParkinsonNet | een introductie
BikevoorParkinson 2020 | 50.000 kilometer gehaald!
Переглядів 1833 роки тому
BikevoorParkinson 2020 | 50.000 kilometer gehaald!
ParkinsonNet Congres 2019 | Terugblik
Переглядів 2474 роки тому
ParkinsonNet Congres 2019 | Terugblik
Aansluiten bij ParkinsonNet
Переглядів 1,5 тис.4 роки тому
Aansluiten bij ParkinsonNet
ParkinsonNet Congres 2019 | Simon Lewis
Переглядів 1114 роки тому
ParkinsonNet Congres 2019 | Simon Lewis
Sporttrainers voor parkinson
Переглядів 1,1 тис.4 роки тому
Sporttrainers voor parkinson

КОМЕНТАРІ

  • @emperorvisas9309
    @emperorvisas9309 2 дні тому

    Life is sad love you all💗💗💓💓

  • @LovethChris-zb7py
    @LovethChris-zb7py 5 днів тому

    Hello! My husband has lived with Parkinson Disease 🦠 all his life and it has caused him lots of pain and discomforts which are unbearable. He has undergo so many therapy and none helped except for Dr Madida Sam natural protocol he undergo and after the treatment plans my husband PD 🦠symptoms was all reversed and my husband is now 48yrs and he looks strong, he is healthy and very okay now… All thanks to Dr Madida on UA-cam..

  • @skookum86
    @skookum86 8 днів тому

    I was diagnosed in 2014 at 53 years old still coping with it. Lots of good information out there to research. Be patient with those who have it.

  • @mariantreber8055
    @mariantreber8055 9 днів тому

    Nobody has enough time and money to see all those "professionals." I gave a thumbs down. We need less poisons in our foods, air, water and soil. HAARP & associates need to stop spraying our skies, then we can all live better!! The medical system in the USA is to keep everyone sick and on meds. It's sick.

    • @skookum86
      @skookum86 8 днів тому

      You’re definitely not wrong

  • @BoldBatbold-bo7zj
    @BoldBatbold-bo7zj 23 дні тому

    Muhammad Ali 😢

  • @MartonyTae
    @MartonyTae 25 днів тому

    My life story isn’t sweet because all my life i have been suffering, even when i properly got diagnosed with Parkinson Disease everything changed and complicated but all through the journey and the person I must thank is Dr Madida Sam i later found on UA-cam who changed my life for good, He cured my neurological disease(Parkinson Disease) completely with their Parkinson herbal medicine. I recommend them 100% to anyone sick, they will help you and cure you. Again they’re so caring and loving ❤…

  • @tuongle7206
    @tuongle7206 Місяць тому

    My grandpa is 91 and he has parkinson disease since 3 years. It very sad for me to see that the disease ist getting worse over time. My grandpa is getting trouble to move, to talk, and also to eat :(

  • @LovethChris-zb7py
    @LovethChris-zb7py Місяць тому

    Hello! My husband has lived with Parkinson Disease all his life and it has caused him lots of pain and discomforts which are unbearable. He has undergo so many therapy and none helped except for Dr Madida Sam natural protocol he undergo and after the treatment plans my husband PD symptoms was all reversed and my husband is now 48yrs and he looks strong, he is healthy and very okay now. All thanks to Dr Madida on UA-cam.

  • @MartonyTae
    @MartonyTae Місяць тому

    My life story isn’t sweet because all my life i have been suffering, even when i properly got diagnosed with Parkinson Disease everything changed and complicated but all through the journey and the person I must thank is Dr Madida Sam i later found on UA-cam who changed my life for good, He cured my neurological disease(Parkinson Disease) completely with their Parkinson herbal medicine. I recommend them 100% to anyone sick, they will help you and cure you. Again they’re so caring and loving.

  • @Graigmartins
    @Graigmartins Місяць тому

    I want you all to join me thank Dr Madida Sam on UA-cam for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this I want you all to join me thank Dr Madida Sam on UA-cam for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100%✅✅✅.

  • @keitymarley733
    @keitymarley733 Місяць тому

    Parkinson disease 🦠 🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain”.

  • @danielasutherna8191
    @danielasutherna8191 2 місяці тому

    I want to appreciate Dr Madida on UA-cam for treating my Dad of his Multiple sclerosis and parkinson disease with their natural meds🌿💊🌿..

  • @iamdipu02
    @iamdipu02 3 місяці тому

    ❤❤❤

  • @TheSwipeking
    @TheSwipeking 3 місяці тому

    Very Very very Expensive.... Or Just buy an Aquacure AC50... $2800 USD and it does a way better job and is 100% PERMANANT and fixes all your bodies STEM CELLS...not just the ones you pay for to get fixed??? Parkinson's Disease & Dementia and brain cancer especially are where this Brown's Gas Hydrogen device does some of it's truly amazing best work NO BRAINER RIGHT????????? DAAAAH..🙏🙏

  • @akshaygomare5390
    @akshaygomare5390 3 місяці тому

    😢😢

  • @givasoram6295
    @givasoram6295 4 місяці тому

    Is it curable with Marijuana ???

  • @keitymarley733
    @keitymarley733 4 місяці тому

    My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌.

  • @parkinson-ismeenverkeersde1514
    @parkinson-ismeenverkeersde1514 4 місяці тому

    Incredible beautiful and thankful ❤ !

  • @kennethdarlington682
    @kennethdarlington682 4 місяці тому

    I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment.

  • @qultee
    @qultee 4 місяці тому

    Of all the names, why Ali though 😐

  • @user-nb3xp5vc4s
    @user-nb3xp5vc4s 4 місяці тому

    Dr Osaba on UA-cam cured my Parkinson's disease there is nothing on earth that is impossible now I be in herbs

  • @amyyarak3302
    @amyyarak3302 4 місяці тому

    Parkinson komt door landbouw gif,niet allen door boeren ook door gemeenten en particulieren,en volkstuinen,o,a Sleeuwijk nieuwendijk Werkendam.nog steeds te koop bij tuin centra,s. Het grootste gevaar zijn de sportvelden waar zwaar landbouw gif en kunstmest gebruikt wordt plus golf terreinen . Baggerslip bij de sportvelden in Gorinchem is zo zwaar verontreinigd dat het door zuurmond af gevoerd wordt naar de slufter ne zwemputten oa in ochtend. Sport lekker ikke niet...

  • @Graigmartins
    @Graigmartins 4 місяці тому

    I want you all to join me thank Dr Madida on UA-cam for helping me with their treatment plan to reverse and cure my Parkinson disease I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100% 🎉🎉🎉🎉

  • @lizzynatir9083
    @lizzynatir9083 4 місяці тому

    Great things Dr Madida on UA-cam has being doing for mankind, I undergo his Parkinson disease treatment plan for weeks and my Parkinson Disease was completely reversed...💫

  • @biguniasinsha5031
    @biguniasinsha5031 5 місяців тому

    i am caregiver from sri lanka i like help

  • @Graigmartins
    @Graigmartins 5 місяців тому

    I want you all to join me thank Dr Madida on UA-cam for helping me with their treatment plan to reverse and cure my Parkinson disease I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100%.

  • @rodrigohammer1492
    @rodrigohammer1492 5 місяців тому

    Love from Brazil! Amazing singer, amazing band. Earth & Fire rocks!

  • @ugamghadi
    @ugamghadi 5 місяців тому

    Huh? Why does this video sounds like my autobiography?

  • @Ohboycommentsection
    @Ohboycommentsection 6 місяців тому

    No, no, no. I am not going to spend the rest of my life with specialists for every aspect of life. Even with solid insurance!!!!! You do you but I am not going to strive to exist when the end result is the same.

  • @adrianodemelo5460
    @adrianodemelo5460 6 місяців тому

    I've got Parkinson Desease.

  • @ladyhopedealerkristenturne5487
    @ladyhopedealerkristenturne5487 6 місяців тому

    My papa has no 2 Sakes his hands

  • @keitymarley733
    @keitymarley733 6 місяців тому

    My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌

  • @vishalchaudhary-nf6gr
    @vishalchaudhary-nf6gr 6 місяців тому

    Thanks to Planet Ayurveda, I've experienced remarkable improvement in my Parkinsonism symptoms. Their medication is a true blessing!

  • @edvardzv5660
    @edvardzv5660 6 місяців тому

    Reading the books of the New Testament, we probably asked ourselves more than once: *"Why 2000 years we do not see those miracles that accompanied the Сhurch of Christ in the I century, as described in the New Testament?"* Why do the so-called preachers of Christ have to prove that Jesus really existed and atheists boldly deny the historicity or divine origin of Christ? Maybe because the Сhurch of Christ has not existed for 2000 years? The Сhurch does not exist in the form in which it is presented in the books of the New Testament, but there are Catholic, Orthodox, Protestant and other christian sects claiming to be the place of the Church, but they not have the only thing that distinguishes the divine from the human and is characteristic of just the Сhurch of Christ -the reinforcement of the word with signs, that is, miracles (Mark 16:15-20). Therefore, some researchers doubt the historicity of Christ, and some of them are not opposed to declaring him a an ordinary philosopher, teacher. But even if Jesus were an ordinary philosopher, his disciples would be ordinary followers of Jesus. And they would not dare to write about the miracles that not only Jesus, but also his disciples, could perform. In this world, the great fertility of atheism can be explained by the fact that there is no main opponent of critics of the Bible - the Church. If there were the Church in our time as described by the authors of the New Testament books, where miracles are performed, the sick are healed, where prophesied, and the dead are raised, no one would doubt the historicity of Christ. Then there would be the same controversy throughout the world as in the first century - Jesus the Son of God or the false prophet who seduces the world by miracles. As a result, we can say that the emergence and development of christian sects and atheism was the result of the fact that over the 2000 years the Сhurch of Christ did not exist. Find *"The Mystery about the Church of Christ"* video on UA-cam. The video reveals the prophecy of the disappearance and reappearance of the Church of Christ before the End of the World. Watching this video will give hope to all who sincerely seek God and will interest those who are not too lazy to think freely. Click on my name to watch the video (The video is in Russian, but English subtitles are included).

  • @lizzynatir9083
    @lizzynatir9083 6 місяців тому

    Great things Dr Madida on UA-cam has being doing for mankind, I undergo his Parkinson disease treatment plan for weeks and my Parkinson Disease was completely reversed..

    • @sma11111
      @sma11111 5 місяців тому

      This disease cannot be cured, it is a chronic disease

    • @lizzynatir9083
      @lizzynatir9083 5 місяців тому

      @@sma11111 that is because you haven't used Dr Madida herbal treatment. Stop concluding on what you haven't tried.

  • @phenombastm211
    @phenombastm211 6 місяців тому

    I wanted to learn what Parkinson disease is after I watch a video of Muhammad Ali with that sickness and damn u had to start the video with Ali, coincidence 😂😂...

  • @asmaamna9021
    @asmaamna9021 7 місяців тому

    Amazing

  • @redouaneortiz4917
    @redouaneortiz4917 7 місяців тому

    My father passed away from it on 12/11/2023... screw this horrible disease

    • @Vospader21
      @Vospader21 6 місяців тому

      That date hasn’t even arrived yet.

    • @tamatirobin1757
      @tamatirobin1757 6 місяців тому

      @@Vospader2112th day of the 11th month mate

    • @salmanfaris7276
      @salmanfaris7276 6 місяців тому

      How many years he had the disease??

    • @redouaneortiz4917
      @redouaneortiz4917 6 місяців тому

      @@salmanfaris7276 I think around 2015 he was diagnosed with parkinson's and on 2017 he got Alzheimer's too...

    • @bertohernandez4183
      @bertohernandez4183 6 місяців тому

      My father died from that as well 😢 in 2022 ❤️ rest easy daddy

  • @NiceSimon13
    @NiceSimon13 8 місяців тому

    Man, my grandpa died in 2020 around 80 age becouse of Parkinson's disease. It was making him impossible to eat any food. He could not eat anything on 10 days!

    • @jelly.212
      @jelly.212 7 місяців тому

      @@iloveschool720 damn that's sad

    • @iloveschool720
      @iloveschool720 7 місяців тому

      @@jelly.212 hi, yes well the situation isn't good And it's scarier when knowing his condition will worst He doenst go to the gym, we bought a treadmill but he hasn't used it yet Idk what he is waiting for He knows he doenst a son to help him, we are girls, the youngest is 13 My dad is sometimes so dumb, it's makes me hate him

    • @ariannadhaarmik1864
      @ariannadhaarmik1864 4 місяці тому

      ​@@iloveschool720I'm so sorry. I feel your pain, same situation here. My dad is stubborn 😣 and it stresses me out. He doesn't take anything seriously

    • @iloveschool720
      @iloveschool720 4 місяці тому

      @@ariannadhaarmik1864 I don't understand I swear He could go to the gym but my mom told me it's hard, (they have a hard time keeping their balance) But still il sure there are plenty of things they can do to help themselves a bit May God make things easier and reward our patience

    • @grief.1581
      @grief.1581 2 місяці тому

      ​@@iloveschool720There are ways to persuade someone who is stubborn. Read or listen to the audiobook How to make friends and influence people. Maybe you can get a tool from it to persuade your father. Using conventional ways like coaxing don't work on stubborn people. Good luck

  • @awaishussain3129
    @awaishussain3129 9 місяців тому

    Sinemet Tablet 25mg/250mg is best to helpful in such conditions. Proudly made is Pakistan by Searle Pakistan Limited formerly Merck Sharp & Dohme.

  • @kalebgonzales4009
    @kalebgonzales4009 9 місяців тому

    You didn’t mention what it’s about. You just pointed out symtoms/ advices.

    • @jafarnaduthody7573
      @jafarnaduthody7573 3 місяці тому

      Its due to destruction of specialised ganglions in the brain. Also production of dopamine in the brain gets reduced

  • @EekZombies
    @EekZombies 9 місяців тому

    I used to have those physical symptoms he frst described. I cut out gluten and they improved in a huge way. I dont freeze and fall anymore. My hands dont have tremours anymore. However im not sure what i had since i was never diagnosed.

    • @shakiibasas3228
      @shakiibasas3228 5 місяців тому

      What did u did bro am suffering right now 27 years old 😢

    • @EekZombies
      @EekZombies 5 місяців тому

      @@shakiibasas3228 Cut out gluten, fried & processed food & sugar. I take a lot of vitamins, make a green smoothie every day because veggies and coconut water help with my chronic fatigue. I startd taking probiotics and that helped my fatigue & brain fog immensely. Drink bone broth to repair my gut and for some reason helps me sleep better. B complex, vitamin C & D, fishoil, zinc. I try to excercise when im feeling up to it - easy stuff like walking or riding a bike. Im sorry u are going through this. Hope this helped a little & things get better for you.

    • @cryptoearning3799
      @cryptoearning3799 4 місяці тому

      ​@@shakiibasas3228what problem you are facing plz explain

  • @BoltzVideo
    @BoltzVideo 10 місяців тому

    A huge factor in the cause of Parkinson's disease is vaccine injury.

  • @Golden8g
    @Golden8g 10 місяців тому

    Muhammad Ali

  • @fatty_j
    @fatty_j 10 місяців тому

    "This is Ali", I see what you did there. 🙄🙃

    • @dmm3124
      @dmm3124 5 місяців тому

      The Champ.

  • @geethunarasimhan8907
    @geethunarasimhan8907 10 місяців тому

    My father passed away last year due to Parkinson's disease 😢😢😢😢😢😢😭😭😭😭

    • @arifkhan-jw7kr
      @arifkhan-jw7kr 9 місяців тому

      How long he had ?

    • @iloveschool720
      @iloveschool720 5 місяців тому

      @@arifkhan-jw7kr is parkinson deadly ????

    • @arifkhan-jw7kr
      @arifkhan-jw7kr 5 місяців тому

      @@iloveschool720 yes

    • @incognito_human
      @incognito_human 26 днів тому

      Parkinson's itself is not a fatal disease, people die due to problems caused by it.

  • @DiiVolunt
    @DiiVolunt 10 місяців тому

    i have essential tremor but i have 2 of the symptoms. like wat

  • @Trish-ql9kz
    @Trish-ql9kz 11 місяців тому

    Good luck to anyone who can easily access these ‘ professionals’.. since diagnosis 18 months ago, have only seen neurologist twice even though the medication is not doing what it’s supposed to do. Can only access a Parkinson’s nurse on the phone meaning you always end up speaking to a different one, Dietitian spoke briefly on phone then sent a few information leaflets, ... these videos make it all sound as if there is plenty of on- going support, trouble is, you have to have someone in your corner with assertiveness and time to keep on at them... turn your back and they’ve forgotten about you

    • @rhondasheppard5158
      @rhondasheppard5158 10 місяців тому

      gawd thats horrible. I am so sorry you are going through this with 0 support from professionals you need.

    • @artsmart
      @artsmart 7 місяців тому

      Sorry you're going through this Trish, I'm having much the same troubles with my wife.

    • @Jay-uo1sn
      @Jay-uo1sn 4 місяці тому

      Yeah the system is crap

    • @abdeldjalilhamidi3246
      @abdeldjalilhamidi3246 3 місяці тому

      I am working on a project for ppl who have the disease and I would like your feedback. Is there a way we can talk?

  • @joeribaby
    @joeribaby 11 місяців тому

    Stakker! Hoe ze er nu bij zit en hoe ze vroeger van het scherm knalde. De tijd is soms wreed voor mensen.

  • @nellekevangelder1828
    @nellekevangelder1828 11 місяців тому

    Wat die meneer zei is zo waar ! Je beleeft de dingen nu veel meer en intenser Alles wat je nu nog kan ,geeft je een diepere vreugde ,het is niet meer zo vanzelfsprekend .Je waardeert het leven meer .Wat mij raakt is de lieve uitspraken van mijn kinderen zoals: we zullen je nooit in de steek laten ,we helpen je erdoor. Ik hoop dat ik nog lang zelfstandig ben ,maar de band ook met de kinderen is dieper.